This will be the one and only picture of me in a wheelchair because of MS. I don't plan on getting back on one of those.
This is what everyone wants to see....my actual spinal fluid:) The fluid actually replenishes itself within an hour of taking out of the body. I didn't get any of the horrible side effects from the lumbar punch.
Laid up after the lumbar punch:(
This was the EPT? test where they put an eyepatch (see Casey, D, and Shannon...another reason for the patch:) on me and I had to watch this crazy screen to check the time lapse between what my eyes see and how long it takes my brain to respond. Kind of like an EEG. 
This first video was a funny one of Jake explaining to the kids about what I was diagnosed with. It was in the hospital. They came to visit me right after my spinal tap so I couldn't pick them up, and had to stay in bed:(The other video is from toady! A nurse came out to the house to train Jake on giving my weekly shot. He totally siked me out the first time...I was getting weak. The meds are called Avonex and it should help me slow down the MS and maintain it. I have gotten 2nd and 3rd opinions and they all say the same thing. I have been through lots of tests lately.
So detail-wise where am I. I have an official diagnosis of MS. I have had DNA testing to rule out a disease called Von Hippel-Lidau that my Dad has. I will be getting results back from that in two weeks. I am seeing a naturopath to check into diet options. I will be going up to OHSU later in November to see a specialist for the remainder of my treatment. My numbness has diminished greatly in my hand and torso. But I have L'hermitte's syndrome...which is like an electronic pulse going through my back, pelvis and legs. I just shock myself all throughout the day, kind of fun:) There are a lot more boring details...but I am still me, and we are all doing great and charging on. Ms. Carlisle
24 comments:
i like those videos. very funny :] you rock fight the good fight! :D
like....omg....like you totally didn't mention my name when you mentioned the patch.
i'm totally suing your ass :)
<3 ya...
-k.
Thanks for the update!!! More importantly though, how are those thumbs doing? Have you evaluated your chances at a career as a Tap Tap Pro? I would imagine after all of the hospital waiting, your amateur career is nearing its end :)
thank you for sharing this experience. you are so amazing!
-lindsay
lots of hugs to you, my dear!!
I have been a “lurker” on your blog for sometime now, and wanted to let you know that you are in my thoughts and prayers! Looks like you are getting the best treatment and you are an awesome woman, with a fabulous family! Take care!
You will get through this ~ look how awesome your fan support is at home?! Can't get any better than that. Fight every day!
Hey there woman! I've been blog stalking you for so very long and this is the most touching entry I have seen so far. First of all, through all the poking and prodding, you still wear that amazingly beautiful, contagious smile. Secondly, your attitude, strength, character, and approach is inspiring and victorious. Finally, and most importantly, the support and love from your husband and children brought me to tears. I can only hope and pray that I have similar unconditional love from a husband and children one day. You are in my prayers Ms. Carlisle. HUGE HUG! ~Steph Smith
I love your kids: "I see." So serious and paying such close attention.
You're awesome.
--janice
Thank goodness you posted...I was thinking about you non-stop......thank you for updating us and I am happy to hear you are in good hands and your ROCK is being, well, amazing as usual! YOu look super pretty in that wheelchair btw....I can't wait to see you and hear more. Like I said, let me know when you are ready for date night, I would love to hang with the kids so you guys can be alone!!
HEY TETA
so i love how even in your hospital bed you are modeling and looking great lol and by the way now that i watched uncle jakes video on what is wrong i COMLETLEY understand hahaha anyways that shot video made me cringe but o well it was very intresting bye teta k
i love you lots kk
your SUPAMAWDOL ( o no no no no)
Loving you and thinking about you here in Denmark. Thanks for the complete update; just a continuing expression of your wholeness and depth. Happy Halloween to you and your gorgeous family.
I have just fallen in love with Jake. Is that ok to say about another friend's husband? :)
What a great teacher! I appreciated the lesson!!! Now the shot?.....
Oye vey you brave woman filming as you are getting the shot. You Brave Brave woman... I started to look away but I wanted to see if he really did do a runnign start. I do a running start on Charlotte... maybe I should be more gentle :)
Teach us more Ms. Carlisle! I now want to learn about nutrition & what you are thinking about the gluten-free life.
Love you & thinking about you often! Love, E!
its good to see you back in action. yess....the patch. What i find really cool is that you still look like an amazing model even though you are lying in a hospital bed. We are thinking of you and love you! We should hang soon, i just want to give you hugs!!
d
Yeaaaaahhh! I'm thinkin' Jake's enjoying himself a little too much in that "shot video"! Good Gawd, you ARE my hero!! I had to watch the video in a couple of sessions 'cause I kept fainting! jk
Love ya LOTS Kathy!
sheli...smile
Thank goodness for the update and thank goodness for the video of Jake's explanation. I needed one on that level to understand square one! I'm happy to see that you are carrying on in true Kathy form - happy, passionate and lively. I'll be anxious to hear more about the naturopath as well. We love you, and it was great to see your mug tonight, even if it was only for 3 minutes! xo.
Read with Indian the subcontinent accent. OK you know what Bambi...that butt Aloo Gobi drew is what you sit on he said it aloo gobi said sit. Bambi thanks for the update with where things are at. I see your legs are alot shorter than they used to be according to Aloo Gobi Obama Hussein's drawing. Ok Bambi and you know what that other sister of yours may have seen the crescent moon and star tonight and she thought to herself Gobama and all of us take care to take care and be nice to each other. This blog is great. I don't know what to post after the election.
Kathy, Kathy, Kathy.... oh I wish I could just hug you. You are a strong and beautiful person. Even when you're in the hospital you look amazing. Your kids are precious as is your husband. I've been thinking about you and praying for you and your family and of course waiting for another post on your blog. I'm so thankful for the update and your willingness to share this with us all. Hugs to you and your family.
:)
thank you thank you for the update! my husband was in awe over the shot video:) sending you lots of warm thoughts.
what would the world do without video? you made me laugh today in spite of the serious situation!! F! :) love you! miss you!
Jake is not only amazing at informing your kids, he made me feel completely at ease! You've been in my thoughts constantly. I'm glad you received your bracelet (the woman in the boutique called them "God's Eyes." I was like, HELLOOOO - they're called Heaven's Eye! :) LOVE LOVE LOVE, Cin
Okay... I totally just deleted my comment somehow... odd... anyways... I'll try again. I was watching that video, so serious and I was learning so much... then all of a sudden in perfect Jake fashion... he had me laughing out loud. What an amazing support he is to you and what a great teacher to those kids. Thinking of you. ~Erin
Thanks for that shot video. I passed out and just came to laughing to write this. Don't ever do that again. Really. I'm serious- really, don't. Live in the moment. Love you,
T
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